Iain Conn is a member of the Board of the MS Society and a friend. Iain introduced me to Nick Winser who had suffered a similar story to my own with his wife suffering from MS. His wife died in November last year and mine in January this year. Talking with Nick it appears possible there is some work that could be done to help the partners of MS sufferers by showing how challenging it is for them. Nick has put me in touch with Tom Shelston to see if there is a fit with a body of work for my MA and a strategic need of the MS Society.
Here is the text of my pitch sent July 18th, 2020,
Nick Winser gave me your name. I know Nick through us suffering similar stories with our wives MS and being put together by a mutual friend (Iain Conn). The reason for contacting you is to see if you have any interest in commissioning some work putting across the challenges the partners of MS sufferers face as the disease progresses. I would expect no remuneration for the commission. I have to deliver a professional photographic body of work by November this year for my MA in Photography at Falmouth University. A body of work in the form of a series of photographs and an article or a video could meet the Universities criteria.
My wife Karen had MS for 30 years and ended up almost completely paralysed. In January this year she went to Dignitas in Switzerland to end her life with Dignity. She was 65, we were married 40 years and she was my soul mate. She was the strongest and bravest person imaginable but as you know it is a relentless and cruel disease. In 2010 Robert Kyprianou and I walked 1000 miles in England under the banner 1000 MILES FOR HOPE and raised over £100,000 in donations which we directed towards Professor Franklin research at Cambridge. I tried everything to help my wife but it was against an unequal foe. I got to within two steps of taking my own life on three occasions over the last ten years and understand why that is such an attractive option. Therapy and friends helped me.
Here are a couple of draft pieces of work that may give you some ideas of the material I have. Take a look at it. We can talk and if we do something together it will need to work with your strategic objectives.
Video – MEN WHO WEAR PINK CRY
I have two curators of my work for my MA and a supervisor. I put this video together to try to get across to them what is behind my work. Nick and Iain have both seen this video.
Draft Portfolio – Draft submission for the International Emotional Rebellion Exhibition – November 2020
Let me know what you think. Don’t feel any pressure and we should only do it if it in some way can help the cause.